Resources For people with lived experience of stroke
RESOURCES FOR PEOPLE WITH LIVED EXPERIENCE
Participate in Research as a Research Partner
Stroke Foundation of Australia
- 30-minute online course
- Stroke specific
- Free of charge
Kids Telethon Institute
- 1.5 hr online course
- Not stroke specific
- Free of charge
National Institute for Health and Care Research, UK
- Webpage with resources
- Starting out guide and link to further resources
- Not stroke specific
- Free of charge
National Institute for Health and Care Research, UK
- Starting out guide only
- Not stroke specific
- Free of charge
New South Wales Regional Health Partners, Australia
- Website with resources
- Not stroke specific
- Free of charge
Ontario SPOR
- Website with resources & masterclasses of different levels
- Not stroke specific
- Free of charge
CONNECTING STROKE SURVIVORS
Global Mapping of Stroke Support Organizations (SSOs)
by the World Stroke Organization (WSO)
Click or tap on files below
Summary report.pdf
Full report.pdf
In 2020 the WSO Stroke Support Organization completed the first ever global mapping of SSOs known to us globally. Check below for more information about this initiative…
Connect with other stroke survivors
Connecting people with lived experience
by the Genyus Foundation…
Hear the stories of other stroke survivors by joining the Genyus community and Facebook group…
Connect with stroke support groups
by World Stroke Organization (WSO)…
Access networks or organisations supporting stroke survivors in your local area…
PATIENT EDUCATION AND INFORMATION MATERIALS
Canadian patient and caregiver resources
by Canadian Stroke Best Practices…
Click below to access resources for patients and caregivers, including symptom self-management, educational content on prevention strategies, rehabilitation, and checklists.
Publication library
by the UK Stroke Association…
Click below to access publications in accurate and accessible health information for stroke survivors, carers, friends and family…
Resources for survivors and carers
by the Australasian Stroke Foundation…
Resources for survivors and carers. Webinars, Stroke Line, stroke recovery, fact sheets and more…